My Personal Ideology: My Way of Living (1)

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“The thing is to understand myself: the thing is to find a truth which is true for me, to find the idea for which I can live and die. That is what I now recognize as the most important thing.” – Søren Kierkegaard.

To know who you are is important as who you are shapes your life. Existence precedes essence, and that it’s up to us to make do with what we have and form our essence based on that. We exist, and then we create, but what we create is different because no two people are the same.

Everyone has their own unique perspective – we witness the same events but we remember and recall through our perspective which may differ from the perspective of others who were also witnesses. In writing, there are multiple points of view. On the basic level, there is: first, second, and third point of view. There’s also omniscient and limited point of views which you’ll use depending on which person point of view that you’re using. All of this goes back to that there’s a lot that everyone can offer because we view things differently from one another. There’s a truth that’s true for you, and that can be used to find the ideology that you feel strongly about.

My constantly shaping ideology that I live by is: taking personal responsibility for myself, continue towards self-improvement, there’s always something to be learned, and doing my best to not consciously harm another person for whatever reason besides to defend myself. Treat thy neighbor as thou would treat thyself. My religious values play a large part in my philosophy – I believe in a benevolent God who through Jesus Christ forgave us for our sins and through belief in our lord savior, we will be saved. Treating others well, or at least being cordial to them even if I don’t feel warmly towards them, is a goal of mine that I try to implement as best as possible. I seek to live a life that’s dedicated to keeping my promises and being a good servant to my Lord Father which includes spreading love and kindness to others. People have been using God to spread their evil and hatred when Jesus tells us to love all. “He said to him, ‘You shall love the Lord your God with all your heart, and with all your soul, and with all your mind.’ This is the greatest and first commandment. And a second is like it: ‘You shall love your neighbor as yourself.’ On these two commandments hang all the law and the prophets.’” (Matthew 22:37-40, NRSV w/A). These two commandments were emphasized by Jesus and both speak of love.

In addition, Jean-Paul Sartre has it right when he states: “Man is condemned to be free; because once thrown into the world, he is responsible for everything he does. It is up to you to give [life] a meaning.” We must take personal responsibility for ourselves because we are free. We are free to choose who we get to be. Even with my mental illnesses, I chose to seek help and be medicated when I desperately needed to be who I wanted to be and not what my mental illnesses wanted me to be. It’s up to me to give my life meaning, and through my hobbies, passions, and surrounding myself with people who help me think critically about my ideas, I find myself developing my philosophy that’s ever changing but solid in its foundation of: personal choice and freedom. In a sense, I do identify with being a Christian Existentialist.

I still have a problem with not letting my illnesses shape everything in my life, but it’s hard when my life is significantly impacted with how limiting my physical capabilities are now. However, I am moving on with getting my tests done including MRIs of my brain and cervical spine to see if there’s any lesions in my brain as my neurologist also thinks multiple sclerosis is a possibility, so we’re going to be thorough to be sure. It’s relieving how fast things are moving now to figure out what’s going on with me. I’m tired of feeling ill all day while being in a good amount of pain without knowing what’s causing all of it. Hopefully once we figure out the diagnosis, it’ll be something that’s curable. I need to keep the faith otherwise I’ll be lost in this pain, and I refuse to let pain be everything about me. I still have my hobbies. I still have a great relationship. I have a lot to be grateful for, and gratitude is an important way of looking at life as it’s just that wonderful to be grateful for things.

Coping with My Chronic Illnesses: A Pain-Filled World (02)

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“Of pain you could wish only one thing: that it should stop. Nothing in the world was so bad as physical pain. In the face of pain there are no heroes.” ― George Orwell, 1984.

I don’t recall ever being in this much pain before without respite. The pain started at the end of June and hasn’t gone away and it’s already nearing the end of July. Normally, there would be a day or two of pain respite, but that hasn’t happened since it started, which is driving me insane. This pain-filled world is what I think hell is like. I watched House M.D. about half a year ago when it was still on Netflix, and I identified a part of myself with Gregory House. Pain changes a person, especially when it’s always there and severely limits their ability to do something. It definitely can make them meaner. I don’t have enough energy to pretend that things are okay anymore. I can forget for a little while when I indulge in my hobbies or hang out with my SO or my friends, but the pain is always there at the back of my mind.

I can’t sleep well without medication anymore; otherwise, I’m waking up in the middle of the night due to pain. At least now I can sleep for several hours undisturbed by pain. I’m close to giving up and going to the emergency room due to the sheer amount of pain I’m in, but luckily, I managed to snag a doctor’s appointment at the neurologist on Monday, so hopefully that goes well! I just want the pain to stop. It’s consuming a lot of my thoughts lately even when I try to push them away.

On a happier note, for coping partly comes from finding good in tough situations, I’m blessed that my SO tries his best to make my life as comfortable as possible right now. I’d be lost without his support. The daily massages are a blessing and knowing that he has my back and is willing to see my illnesses through with me is a great comfort. I am cherished, and though my mind likes to play tricks and make me think otherwise, it always comes back to: “I am cherished.”

It’s a bitter pill to swallow that because of some of the things I was born with, I’m not healthy and am in pain sometimes because of it. Without these breakthrough gratitude moments, my life would be the hell my body wants it to be. However, fortunately enough for me, I am able to remember my blessings. I am able to remember God’s greatness and how despite the illnesses, I still have blessings in my life. I said my prayers today and remembered my place as a child of God and felt a little more hopeful that I may bear with all this pain as we figure out what exactly is going on. I have to keep the faith that we will be able to figure out what’s going on and figure out a way to help me with the pain.

Coping with My Chronic Illnesses: Some Thoughts (01)

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“Those great wars which the body wages with the mind a slave to it, in the solitude of the bedroom against the assault of fever or the oncome of melancholia, are neglected. Nor is the reason far to seek. To look these things squarely in the face would need the courage of a lion tamer; a robust philosophy; a reason rooted in the bowels of the earth.” – Virginia Woolf, On Being Ill.

There are some days that you feel ill from the very moment you wake up. Your body is waging a war with your mind. How can you face it? You know something is not right; you’re unhealthy. You’re not at the top shape you know you could be if your body and/or your mind wasn’t failing you. The constant onslaught of a chronic illness is enough to drive people crazy, and as Woolf puts it: “To look these things squarely in the face would need the courage of a lion tamer; a robust philosophy; a reason rooted in the bowels of the earth.” Finding that reason can be hard, but it’s achievable. And then it’s being gritty and persisting in the direction you want your life to continue going despite the uncertainty of how the illness affects you on the timeline it affects you.

I can only plan as appropriately as I can, even if it’s not that far in advance, but that’s okay. I’m going by my timeline because my timeline involves being chronically ill that has no pattern beyond being every day. The intensity of the illnesses aren’t always the same on a day to day basis, but even on the better days, dealing with the illnesses is still stressful.

Still, slowly, you must fight on through the chronic illness. It’s tempting to give up. There’s nothing sweeter than temptation. I want to give up a lot, but I can’t. I refuse to. Taking each day, sometimes each hour, one at a time and slowing down is what’s best for me. That’s all I can handle sometimes, and that’s alright. Sometimes I’m so hard on myself even when everyone is telling me to take it easy. Truly, sometimes, you are your worst critic. Practicing self-compassion is another strategy to help with this.

Sometimes, my mind is hazy in the morning. It feels like I can’t quite understand what’s going on and nothing registers in me because of it. This feeling doesn’t last long, but sometimes it’s a little scary in retrospect. Moreover, my anxiety heightens the scariness as well when I can’t get it under control. Trying these coping methods helps a little, but ultimately when things are really bad, catharsis by crying and praying is the only thing that helps me feel remotely any better. Once the emotions are drained, it’s then possible to look at solutions as to how I can make myself comfortable while dealing with the chronic illness. For me, the pain won’t go away, but I can deal with it by not making it the center of every thought by trying to do the things that I need to get done or do my hobbies like reading or my language learning activities.

Regardless, things have been looking up emotional-wise. I’m glad that things have slowly gotten better over the past few weeks in all my personal relationships even if my physical health is deteriorating to balance out the emotional stability that I’ve slowly gained. However, I do my best to not allow my illnesses to interfere with my personal development as much as possible, and this blog helps me stay accountable while being a place where I feel willing to write down my thoughts.

My goal of self-improvement (among other goals) stems from wanting to have a better relationship with God, my SO, and myself as I deal with the fact that I’m more than likely won’t ever escape my chronic illnesses like I wished desperately to when I was a little girl. It’s a continuous challenge, especially as my illnesses sometimes dominates my mind and body, but as I stated before, achievable. As Albert Einstein said: “You never fail until you stop trying.” I’ll only fail at my goal when I stop trying so as I don’t like failing, I obviously can’t stop trying.